Lexie Adams - Fall 2005

Introducing our latest CCA Kid, six-year-old Lexie Adams from Tacoma, WA.

Lexie started Kindergarten this year, where she draws, writes her ABCs, reads books, “does worksheets” and goes to the library. But her favorite school activities are riding the bus, having lunch, playing outside and attending movement class.

Speaking of movement, Lexie has been taking tap, ballet, jazz and gymnastics classes for the past two and a half years. She really enjoys her dance recitals. When asked if she likes performing on stage, she quickly replied, “I love to! I get to dress up really pretty.”

She also spends a lot of time outdoors. Besides recess, she enjoys ice skating, roller blading and riding her bike. And there’s always time for her pets: dog Patches; fish Onion; and hermit crabs Speedy and Molly.

Lexie is really creative and loves to color, cut and paint. In fact, she just finished making a lamb puppet. “She’s always creating,” her mom said. And it helps that she has three grandmothers who keep her well stocked with arts and crafts supplies!

Lexie and her family found out about CCA through a friend. Through CCA, Lexie has made a lot of friends. She and her family have attended the Tempe and Nashville retreats and plan to be in Hershey, PA, for next year’s retreat.

She also had the opportunity to meet Cher backstage at one of her concerts. And, as all the CCA Kids interviewed would agree, Lexie thinks she’s very nice.

Lexie has Crouzon syndrome. She has had three surgeries so far, and she’s about to go to the doctor to find out how many more she has to have. Through all of the appointments, procedures and surgeries, she has been very brave, cooperative and strong. And that’s her advice for other kids in her situation. “Doctors give you great care. Be brave and do what they tell you,” she said.

If you would like to share your story with CCA, please send an email to Annie Reeves at areeves@ccakids.com. If your story is chosen, with your permission, we will edit and publish it in the CCA newsletter, on the Web site or use it for public awareness programs. Not all stories will be selected.

Toll-Free Hotline

Physician Listing

Qualified Centers

Family Networking

Educational Booklets

Information and Support

Financial Assistance

CCA Newsletter

Cher’s Family Retreat

Public Awareness